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Showing posts from April, 2017

Reflecting on Connections

I already have a disorder, do I need to "look" a certain way for you to recognize that I'm not your definition of "normal?"

I suppose if I have a disorder or disability, you're expecting me to look or act a certain way.

It can't actually be possible that I am a high-functioning person with a disorder.

Parents and guardians with children diagnosed, especially with Apraxia, encounter this battle often; the discrepancy of average physical appearances yet different internal abilities.

When an adult converses with your toddler, and given the toddler's difficulty in communicating, you nicely interrupt and explain, "Oh, they're still learning. They have Apraxia, it's a disorder that makes it difficult to speak."

Suddenly, the adult's demeanor changes.

They aren't as engaged in talking to your child because your child can't talk, the child is different, and they aren't who they initially thought. The adult thought your kid …

Arising Walls

"There is freedom waiting for you, On the breezes of the sky, And you ask "What if I fall?" Oh but my darling, What if you fly?"  -Eric Hanson
This message has weighed heavily on my heart.

A message I know myself and all growing children with Apraxia wish to express, but one I know parents and guardians refuse to hear.

Lately, via social media posts,  I have noticed  the clear crossroads that a child with Apraxia faces as they mature.

Do they stay in speech therapy in middle/high school? Or do they try leaving therapy and testing it with the "normal" kids?

There's never a fully right or wrong answer to these questions. Some children are even dismissed early from therapy, avoiding this battle altogether. While others are not dismissed and do face this crossroad.

I was one of the few not officially dismissed. At fifteen, I personally quit speech therapy.

That choice was not warmly welcomed by parents nor by my SLP's, but they respected my choice.

My cho…

Apraxia: Where Small Decisions, Have Life-Long Impact

I always pride myself on the fact that I never let Apraxia define me. I never used it as an excuse and I held myself to the same standard as everyone else.

High School Spanish class? I can't say my R's, that's alright. I'm going to roll my R's the best way I can.

I want to pride myself on the fact that "I did it all by myself."

But, I simply can't.

After going through the old paperwork, school reports, and talking to my parents about it all; my parents' decisions early in my life set me on a path.

A hard path, a needed path, but a successful path.

When we moved to Burbank and joined the Burbank Unified School District from LA Unified, I had to re-do all of those placement tests, IEP's, speech and psychologist meetings.

The whole nine yards again just to say I had a speech issue (they couldn't say 'Apraxia,' since it didn't really exist) and I was partially autistic.

Later we'll find out I was apraxic and not autistic, but he…