Showing posts from May, 2017

Recipe for Awareness

Historically, great movements and societal acceptance were results of bridging communities together. In bridging people together who otherwise are not from the same "side." Women's Suffrage entailed strong women fighting for women's equality, but it took a male-dominated government to put it into law. Holocaust remembrance is not exclusive to the Jewish community, but also the non-Jewish community as well. Autism awareness, more recently, found success by having a Sesame Street character with Autism to unite children with and without autism. You should see where I'm getting at. Awareness is achieved when we unite the divided and acknowledge one common goal. In regards to Apraxia, we can only increase awareness and acceptance by uniting with the non-Apraxia community. It's easy to live in an Apraxia bubble. It's safe to stay within the bubble and talk about Apraxia with others that know Apraxia. But that doesn't increase awareness. It'

Curiosity Killed The Cat. But Satisfaction Brought It Back?

An Apraxia diagnosis is beyond overwhelming and leaves us wanting answers. Genetic testing, neurological screenings, and the money and machines involved in our desperate hunt for answers. It is overwhelming and, often, with little payoff. As much as we want definitive answers as to why a child has Apraxia, there's definitely a balance involved between hunting for answers and purely enjoying the journey of raising a child. Sadly, even if you do find these answers as to exactly why and how your child has Apraxia, it may not satisfy your thirst. Your child is still fighting for their voice whether or not you know what genetic mutation they have or what the neurological testing says. The answers you hope to find in these tests, will not resolve the fact your child is still fighting to overcome Apraxia. It may give you knowledge about exactly why your child has this disorder, but it will never make the disorder vanish. It won't alleviate their struggle to find their voice.